Back in 2014, I posted that my husband, George, was diagnosed with bladder cancer. It was alarming because he had no symptoms; it was found during a routine physical when something was flagged in his bloodwork. It led to a cystoscopy, several types of scans and tests, and ultimately the removal of his bladder and a urostomy bag for urine output. It was a rough surgery and a lengthy recovery.
But after some trial and error and a few complications, he made it through and adjusted to the urine bag. He continued to have checkups at regular intervals, first very often, then every three months, then six, then yearly. When he reached the five-year mark, the scans continued to be clear and the doctor pronounced him cancer-free.
Fast forward to 2022.
What we thought was completely gone was a little too good to be true. In February, while we were in Arizona, George became very ill with nausea, constant diarrhea, chills, and loss of appetite resulting in a drastic loss of weight. Emergency room visits, hospitalizations, numerous doctor visits and scans became routine. He was diagnosed and treated for diverticulitis but nothing that was prescribed seemed to help. I couldn't imagine trying to get him back home to Minnesota where our regular medical care was. I really thought we were stuck in Arizona and my husband wasn't getting any better.
When we told our kids we just couldn't risk coming home, my son took charge, flew to Arizona to help close up the park model and get us packed, booked our airline travel, arranged for wheelchairs, and single-handedly managed George so I was quite literally just along for the ride. God bless him.
Once home in Minnesota, we headed to the local hospital emergency room and George was admitted to the hospital. Another CT scan revealed a rather good-sized and suspicious-looking mass adjacent to the colon. A colonoscopy was ordered but was unsuccessful because the scope couldn't get past a certain point to get near the mass. George continued to get weaker and the decision was made to move him to a nearby transitional care unit. Another colonoscopy was ordered, this time at the University of Minnesota, and again, after an hour of trying, it was unsuccessful in reaching the mass to get a biopsy.
Finally, it was decided to try a needle biopsy by going to the site through the skin. Enough tissue was obtained to analyze and the results were not what we'd hoped, although admittedly we both had a gut feeling. The diagnosis was urothelial cancer. It was thought that when we assumed he was cancer-free, some nasty cells had crept their way up to the area just beside the descending colon.
And now we have an oncologist to add to our medical team.
The next step was a PET scan and that, too, resulted in more unwelcome news. The cancer was seen in multiple lymph nodes. The oncologist, however, was glad to see it hadn't invaded the liver or other organs and we decided we'd take any shred of positive news we could get.
Why did I give you all this detailed background information?
So many wonderful people including family, friends, relatives, neighbors and acquaintances have been asking about George's progress. So I thought about starting a CaringBridge site to keep everyone informed and updated. Then I remembered I have a blog! So I'll use this way to update and let you know when there's a new post.
Next steps?
Next week a port will be implanted and a series of immunotherapy infusions will begin once every three weeks taking us to the end of September. We're told there will be another CT scan in between to check his progress and, of course, more visits to the oncologist.
But there are more fish 🐠 to be caught, more outdoor exploring to do, more cribbage games 🎴 to play, and much more doting on grandchildren and great-grandchildren.
We are more than ready to hit the START button.
Your prayers and positive thoughts are more than welcome. 🙏🙏
If you choose to join as a follower, I would be thrilled.
